First, I know that it is absolutely meant to make me feel
better. I appreciate it. I really do. You want me to know that “normal kids”
line stuff up, write on the walls, pee all over the floor, climb the pantry,
lose their minds in the grocery store checkout, and create general destruction
around the house. I get it, I hear you, and again, I appreciate your compassion
and camaraderie so very much.
But, I’m going to tell you something that you maybe don’t
realize. You’re not only saying it to make me feel better…you’re saying it to
make yourself feel better. Because you are a good person and a good friend, you
want to convince yourself that what we’re facing isn’t really as tough as it
is. It’s self-preservation in your subconscious, and if I were in your shoes, I’d
be saying the same things.
Lots of the crazy things that happen in our family have
happened to other families, but when you throw autism in the mix, you add
another layer of complexity that it indescribable. We can’t communicate, we can’t
just change the routine on the fly, we can’t recover as quickly...him or me.
But we get better at it every day…I think…I hope.
So let me set the stage. Patrick just started a new job. We
are SO happy and so proud of him. He started Monday…flew out Tuesday…oh crap.
No problem though right, I can do this with my eyes closed…turns out it
probably would have been great if I’d just kept my eyes closed through the
entire morning.
I have a plan. I’m working from home because we have a huge
progress report for our grant due next week, so bonus, I don’t have to get
dressed! Throw on some running clothes, get everyone dressed, backpacks packed,
dogs fed, we are completely killing it! So then there’s the timing issue this
morning. Normally, when I’m flying solo, I drop off Larkin at school first,
which is a dropoff line where they just open the car door and out she goes. But
it’s freaking summer…and she had a field trip today and HAD to be there before
Kellen’s clinic opened. No problem…I can do this.
Off we go to drop off Larkin, sign her in, walk Kellen back
to the car, and then…yep…thermonuclear meltdown. Lays down in the middle of the
parking lot between the cars, parents going every which direction, and a super
busy road yards away. We struggle for a while, but I’m a safety-at-all-costs
kind of person, so I know I need to get him contained in the car. I managed to
pour him into the backseat somehow, but he’s still trying to escape. I then get
in after him and shut the door so we’re both in the backseat. He them proceeds
to wedge himself into the floorboard in such a way that I can’t even begin to
pick him up and get him in a carseat. Not to mention, I’m now basically sitting
in HIS carseat (you know because we got in on that side), so I’m going to have
to get him into Larkin’s carseat. I’m pretty sure 15 or so minutes go by, along
with at least 2 different cars per side parked next to us, so yes, if you’re
keeping count at home, that was at least 4 moms/dads staring at the crazy lady
in the backseat of her car with her clearly poor behaved son. I did not give
anyone the finger…I’m putting that in the win column.
I finally physically get him to sit in Larkin’s carseat, but
then he starts the inevitable backbend to keep from being buckled. Yes, this is
exactly where everyone says, “my kid does that all the time, it’s terrible”. I
challenge you to try to do this with a SIX year old who is at the 90th
percentile in growth for his age and is ridiculously strong and fit. However,
in a battle of wills, I still win (for now), so I got him buckled. He’s crying,
I’m about to start bawling, and then I realize the ridiculousness of my
situation.
I’m in the back seat of the car…with the doors closed…and
the child locks on…I can’t get the eff out. I closed my eyes for a second,
mustered as much dignity as I could, and crawled over the console of my car
into the driver’s seat…at this point, I had even more people staring. I smiled
this time, put on my sunglasses, and took a really deep breath. I can only
imagine the various retellings of my morning “Oh my God, at daycare this
morning, this mom was totally crazy sucky at parenting, she couldn’t even get
her kid in the car seat.”
I got myself together and drove off. Kellen cried a good bit
of the way to his clinic while I tried to tell him soothing and calming things.
As soon as I drove away from dropping him off, I fell into the ugly cry. I get
home…Larkin forgot to close the upstairs gate…so Raven (the newest Great Dane)
had gotten hold of Kellen’s overnight diaper and torn the thing up all over my
bedroom floor…
I’m fine now. I wanted to crawl back under the covers and
just sulk, but there’s just too much to do. Half an hour and a caramel
macchiato later, I was returning to normal. Mom texted me to see how the
morning went and clearly I couldn’t possibly recount the events via text. As I
began to retell it, I found myself laughing at the ridiculousness that was my
morning. I was okay. I was recovering. And by the time I picked up Kellen, he
was of course totally fine and actually ended up having a great evening.
Forget the fact that the internet went out in the afternoon
(spent the afternoon at Starbucks working), that one dog went crazy for some
unknown reason and the other dog chewed up something and we STILL have no idea
what it was in its former life.
This is our life. This is our life with autism. It’s not
easy, it’s not normal (well it’s normal for us but obviously not for most of
you guys), but it is worth it. At the end of the day, we all got what we
needed: Larkin had her field trip to the Dynamo Stadium (she said the locker room smelled like stinky armpits), Kellen made it to
therapy, I managed to get out all of the necessary emails and come up with a
pretty good first draft of the progress report, Patrick seems to have had a
super productive day in Chicago, and we’re all still (mostly) sane.
We live to play another day (say it with a Cajun garbled
accent, you get bonus points if you know the movie). On the bright side, our
lives will never ever be boring...also Patrick comes home tomorrow so that
helps.
I've debated posting this for awhile, but I am going to go ahead and say it. I don't think people are saying "oh yeah, that happens to us to" to any way belittle what you are going through. I think people are saying it to let you know that they are in no way judging you. I've had to wrestle Andy in his car seat. He is freakishly strong, lucky for me I have a good 40 pounds on you and an SUV so when I got trapped in the back seat, it was an easy jump over. I would never judge a parent in Target or wherever, so just do what you have to do and don't worry about us. We are secretly thinking, 'You go mom!"
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